Queens On A Roll

S2 Episode 3: A Mother's Perspective On Raising A Child with Autism

August 16, 2022 Latavia & Various Guests Season 2 Episode 3
Queens On A Roll
S2 Episode 3: A Mother's Perspective On Raising A Child with Autism
Show Notes Transcript

Description of Image: Black & Blue background On the left is an African American female with a white off the shoulder shirt in a wheelchair. Then Queens On A Roll in Gray Letters with a purple outline with a crown on the Q. The word Roll looks like a wheelchair and the word podcast in Gray Letters with a purple outline in all four corners

In this episode I sit down and speak with a very dear friend, Ms. Shontae to discuss what it is like for her to raise her son who was diagnosed with  Autism. So Come Roll with Us!

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(Bells Chiming) Hey Everyone!!

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This is Latavia, and Welcome Back

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to Queens On A Roll podcast

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I have the lovely Ms. Shontae with me here today.

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She is a very dear friend of mine. Hey, Ms. Shontae!

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How you doing today? I'm doing great.

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How is everybody doing?

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I'm doing great.

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So are you ready? I am.

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All right, we're going to get into the

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fact that your son has Autism Spectrum Disorder.

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So that is the topic for today.

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Are you ready to roll? I am.

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So let's roll.

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(Instrumental Music)

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So, Ms.

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Shontae, can you please tell everyone

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what Autism Spectrum Disorder is? Sure.

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So, autism spectrum disorder, it's a neurological and

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developmental disorder that affects the way people interact

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with others, communicate, learn, and behave. Right.

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So I know you have a son.

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What was it like raising him

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and he's ably different?

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So my son was diagnosed a little later on in

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his childhood, but it started off as a speech language

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delay, so we just thought that's what it was.

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And we were finding that he just wasn't

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communicating as effectively as other children his age.

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By the time we got the official kind of diagnosis, we

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were already late to start early intervention, but we still were

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able to get him in at the tail end of early

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intervention and was able to get an ABA therapist.

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Great.

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What were some of the milestones that you

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noticed he was missing? Uhhh with ABA therapy

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I noticed that my son communicated better.

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He answered to his name as opposed to looking through

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me, which he did before he received ABA services.

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He was now looking at me, and he was able to

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respond to his name, able to say mom for the first

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time, able to more articulately, at least be able to get

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my attention to help him with his needs.

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Because children who are nonverbal, it's very difficult in

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the sense that you have to anticipate every need.

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So it's almost like when you have a

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newborn infant where if they cry, you have

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no clue if they're crying because they're wet,

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they're hungry, they're hurting or in pain, you know they're

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constipated, you have no clue why they're crying.

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You have to figure it out.

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And so it was just me constantly trying

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to figure it out, which was very exhausting.

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As a parent, I was just getting

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ready to say that, was it stressful?

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And what did it feel like? Uhhh getting a diagnosis

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of autism or I feel like any kind of

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diagnosis for a special needs child can be difficult.

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I think that initially, I felt a lot of guilt

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and shame because I felt like it was something that

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I did wrong to cause my son to be autistic.

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And once I got over that hurdle of

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just knowing that there was nothing that I

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could have done to prevent him having autism.

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When I took myself out of the equation, I

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was able to really give my child what he

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needed, which was unconditional love and support.

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He was already receiving unconditional love, but the support I

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couldn't give him because I was so much in my

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head about like how could this happen to my child?

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So once I got over that, I was able to

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press through and really be an advocate for my son.

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Right.

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And I think that's really great because

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there is no cause for Autism.

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They speculate it could be genetic,

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they speculate it could be environmental.

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So there's no cause for that.

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So I can really understand and really

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sympathize with the fact that you felt

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like it could have been your fault. You know

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And I never want any parent to feel like that. Right.

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Life happens, situations happen, and so it's just

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another hurdle you gotta get over.

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But your son is great now, and he

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seems to have made a lot of progress.

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Can you tell us more of the progress he has made? Sure.

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So my son was a lot more

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nonverbal in his earlier years and ummm wasn't

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really interacting with other children his age.

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He now interacts with select peers.

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He still plays alongside a lot of

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children, but he's able to actually play.

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He's in more interactive play

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and socialization with his classmates.

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So that's been kind of paramount.

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There's still a lot of repetition at home,

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still me saying kind of the same things.

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Routine is so important for

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children with special needs.

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There's so much instability in the world, and you know the

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home environment is one of the best places that

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children should have stability and also the school environment.

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So I feel like a combination of

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home and school and having really good

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communication with you know your child's teachers.

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Their occupational therapists.

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Their speech therapists.

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Their physical therapists.

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Finding out whatever exercises or tools you can use

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at home that will tie into the goals that

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the therapists have for your child really kind of

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helps create kind of this one world that your child exists

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in that's really supporting all of their goals. Right.

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I always say it's always a big team effort, right.

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When you're raising someone who's ably different,

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you need that whole village around you to make

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sure that they are productive members of society.

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So that is really great.

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(Delayed Beat Sound Effect)

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Have you faced any challenges so far

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with him going through his educational journey?

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Were there some like positive impacts, negative drawbacks?

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What has that been like for you?

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My son benefited from being able to

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go to AMAC, which was the Aerial

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Metro Association for children with autism.

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So he was there for the first few

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years of his formal education in preschool.

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He was there.

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Eventually they transitioned him out

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into the public school system.

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So he's now at a District 75 school

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here in New York City, which means any

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child who has any type of developmental delay,

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intellectual disability, emotional or social disability, those kinds

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of schools are geared towards those children.

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So it was a hard transition because I felt like

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AMAC was very supportive and it was specialized.

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So AMAC, for people who don't know, it was

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a school that essentially went to age 21.

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So children were there until they became young

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adults and then sometimes the adults would therefore

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turn...have some type of job role at

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the school or somewhere out in the community.

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So it was a really, really awesome institution.

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And unfortunately, they did close due to

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lack of funding and other things. So that was hard.

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Making the transition to public school, and I always feel

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like public school is so hard just because of lack

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of funding and then lack of, just politics.

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Certain school districts get more funding and

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more resources that they need than others.

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And so I was really hesitant to

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put him in the school.. uhh public school system.

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But lots of prayer and lots of

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tears and lots, again lots of communication.

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It's all about communication.

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Being your child's best advocate,

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you are their best advocate.

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You know them better than anybody else does.

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So you know what their deficits are,

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whether it's gross motor, fine motor, emotionally,

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whether they can handle certain things.

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I mean, you are their best advocate.

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So it was a lot of communicating with

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my son's therapist again, his teachers, finding out

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where his strengths were in the classroom, finding

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out socially how he was adapting to other

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children, you know all of those things are really important. You know

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It's important for you to know, but it's important

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also for you to be just as good as

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a listener as you are an advocate.

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So being able to ask the teacher what were some

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problem areas for him in school, we were able to

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have a dialogue and be able to establish, okay, this

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is what I do when I feel like he's getting

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off of track or he's having off task behaviors.

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This is how I've been able to get his attention.

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And together the collaboration, you know we've been able to identify

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ways to keep his attention, to keep his focus,

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to encourage him when he feels discouraged and he

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doesn't want to do an activity or task.

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And it's just been really, its really important.

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I can't stress the importance enough of just

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really being a clear and effective communicator with

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the people who are working with your child. Right?

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That is very, very, very important.

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My mom was like my biggest advocator, so

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I definitely understand where you were coming from

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and I can definitely relate to being reluctant

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about being in the public school system.

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Not really sure, right, because I talked about

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it in a previous episode where I didn't

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really fit in one particular mode. Right.

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So I grew up going through general ed,

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but I was under the umbrella of special ed so

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I didn't particularly fit in a box.

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And so that can be hard when you don't fit

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the mold of what the New York City DOE

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definition is of someone who needs to be in special

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ed or someone who needs to be in general ed.

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So I can definitely understand the nervousness.

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I guarantee you my mom felt the same nervousness. You know

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So these are things that I feel like

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on some level all parents experience who have

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children who are ably different.

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And like I said, I experienced it myself.

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So I kind of understand the difficulty of trying to

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navigate and trying to make sure he is where he

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needs to be and get the appropriate services cuz it

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definitely is a difficult balance, you know and you definitely do have

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to be your child's best advocate.

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If you don't speak up right now, he's not at

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an age where he can speak up for himself.

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So definitely parents need to speak

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up more and speak out.

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I think that's really one of the biggest things that we

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need to do and we need to really emphasize. What are

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some of your advocating tools that you use now?

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So for me, just thinking about autism,

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anybody can go on Autism Speaks.

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Autism Speak has a variety.

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Kind of like this whole library of resources,

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video tools, everything, little scripts, they have everything

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that you can just learn about autism, learn

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about the different types of autism because again,

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it is on a spectrum.

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And to know that like what autism looks like in your child

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may not look the same way in the next child.

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Every disability, there's a category for

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that disability, but there are still

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a spectrum within every disability category.

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So understanding that a special needs child is just that

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very special and that what the same diagnosis may look

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like in one child does not look like another.

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So to know that include NYC, which is a

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huge resource here in New York, but they also

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still do workshops and things like that.

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Just worldwide advocacy, especially for parents who have special

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needs children because your IEP is your contract between

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you and the school about the services that they

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are required to provide to your child.

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So really having a thorough understanding of

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your child's IEP include NYC does things

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like that, training and advocacy actually through

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include NYC I became an IEP parent member.

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And if you don't know what IEP is, it's

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an Individualized Education plan which again, it has all

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of the related services that your child has.

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It has the formal diagnosis, it has the

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classroom size and setting and any other specialized

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services that your child may require.

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And that is your biggest like, I mean,

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that document for me, anytime we change it,

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I make sure I have the new copy.

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That is um very important to me.

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That is almost like your child's Bible.

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You need that wherever you go just

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to continue to advocate for your child.

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If you move to a different state, if you move to

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a different school, all of those things are important, but include

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NYC has been one of the biggest tools that I've used

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as a parent just because of the training sessions.

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They also have a call center where

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they are available all the time.

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You can call them and ask any kinds of

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questions and they will get back with you with

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somebody who is specialized and can answer those questions

(14:50.3 - 14:52.3)

or direct you to the resources.

(14:52.5 - 14:55.3)

They have a number of resources on their website

(14:55.4 - 14:58.3)

and their information has been invaluable to me both

(14:58.4 - 15:01.3)

as a parent and an advocate for disability rights,

(15:01.4 - 15:03.6)

not just in New York, but all over the

(15:03.6 - 15:05.3)

country and all over the world. Right.

(15:05.3 - 15:07.2)

Those are very great resources.

(15:07.3 - 15:09.7)

Thank you for sharing those cuz I definitely

(15:09.8 - 15:12.3)

think our parents will definitely need that.

(15:12.4 - 15:13.6)

So jot it down.

(15:13.7 - 15:15.7)

Pause this moment and jot it down and

(15:15.7 - 15:17.8)

get it all down because she just dropped

(15:17.8 - 15:21.4)

some wonderful gems on you guys.

(15:21.4 - 15:26.5)

(Gems Were Just Dropped Sound Effect) and Bells Chiming

(15:26.5 - 15:28.9)

And I just wanted to emphasize, you are right.

(15:28.9 - 15:31.0)

Autism spectrum disorder is just that

(15:31.0 - 15:32.3)

it's on a spectrum, right?

(15:32.3 - 15:35.3)

So you got some kids that are non verbal.

(15:35.4 - 15:37.4)

You can have some kids that are verbal.

(15:37.5 - 15:39.6)

You can have some that just struggle with

(15:39.7 - 15:43.2)

social interaction, but they are okay academically.

(15:43.4 - 15:45.4)

So you really just have to know your

(15:45.5 - 15:47.3)

child, know what their strengths are, know what

(15:47.3 - 15:49.5)

their weaknesses are, and it's great.

(15:49.5 - 15:53.6)

(Cartoon Climbing Stairs Sound Effect)

(15:53.6 - 15:58.7)

What do you want to see your son do in the future?

(15:58.7 - 16:03.2)

I want to be that parent that just continues to

(16:03.3 - 16:06.8)

love on him and nurture him, exposure to him.

(16:06.9 - 16:09.6)

I am not ashamed of my child in any way, shape or form.

(16:09.7 - 16:11.2)

We have been to the aquarium.

(16:11.3 - 16:13.6)

My son loves trains just like I do.

(16:13.7 - 16:16.6)

We've been on train rides, both the commuter rail, the

(16:16.7 - 16:19.1)

subway here in New York City, we go out of

(16:19.1 - 16:21.3)

the state to Connecticut to go to the aquarium.

(16:21.4 - 16:22.9)

You know I've always been somebody that

(16:23.0 - 16:25.0)

has traveled with my child.

(16:25.0 - 16:27.2)

He's actually out of the country now with my husband.

(16:27.2 - 16:30.1)

They're home with our family in West Africa.

(16:30.2 - 16:33.4)

So I do not limit my child and

(16:33.4 - 16:35.8)

his exposure to just the world and life.

(16:35.8 - 16:37.3)

He's actually been out of the

(16:37.3 - 16:39.3)

country more times than I have.

(16:39.4 - 16:43.1)

So my goal is that he's exposed and blessed

(16:43.1 - 16:45.7)

with opportunities that will exceed what I've been able

(16:45.7 - 16:47.2)

to do so far in my lifetime.

(16:47.3 - 16:49.0)

So I want him to do and be

(16:49.1 - 16:51.5)

whatever that is he wants to be. Right now.

(16:51.6 - 16:55.4)

He's just so interested in mechanical, electrical.

(16:55.4 - 16:57.5)

He likes being able to get the

(16:57.5 - 17:00.2)

mechanics of things, so just nurturing that.

(17:00.2 - 17:03.0)

He watches a lot of train videos, not just

(17:03.0 - 17:06.2)

rails in the United States, but over in Europe.

(17:06.3 - 17:07.9)

So he is very much into

(17:08.0 - 17:10.6)

like commuter rails and subway rails.

(17:10.7 - 17:12.3)

So maybe he'll be an engineer or

(17:12.3 - 17:14.1)

a conductor or I have no idea.

(17:14.2 - 17:17.4)

But I want him to be whatever he wants to be.

(17:17.4 - 17:19.4)

And I want to continue to instill in him that

(17:19.5 - 17:21.2)

he can be whatever he wants to be, right?

(17:21.2 - 17:23.2)

And I'm excited to see what he

(17:23.3 - 17:25.8)

grows into, what he blossoms into.

(17:25.9 - 17:28.9)

And like this is exactly why I do this podcast, right?

(17:28.9 - 17:30.8)

Because even though he is a part of

(17:30.8 - 17:33.3)

the ably different community, he's still a person.

(17:33.4 - 17:35.4)

He still has likes, he still has wants,

(17:35.5 - 17:37.9)

he still has needs, he's still a person.

(17:38.0 - 17:40.5)

So we have to always remember to nurture that.

(17:40.6 - 17:41.8)

And that's really great.

(17:41.9 - 17:43.5)

I know you said he went away.

(17:43.6 - 17:45.3)

What are some things that you did

(17:45.4 - 17:47.2)

to prepare him for that trip?

(17:47.3 - 17:49.4)

Well, one of the things that before we

(17:49.4 - 17:51.4)

got his diagnoses, me and my husband had

(17:51.4 - 17:54.5)

always agreed that my son would learn one

(17:54.6 - 17:57.0)

of the local languages that my husband speaks.

(17:57.1 - 18:00.3)

So my son actually, he can comprehend everything

(18:00.4 - 18:02.0)

my husband is telling him because he's been

(18:02.1 - 18:03.9)

hearing that language since before he was born,

(18:04.0 - 18:05.4)

when I was still pregnant with him.

(18:05.5 - 18:08.7)

So he is home and he is understanding what they're

(18:08.7 - 18:12.2)

saying because he's been exposed to it his whole life.

(18:12.3 - 18:16.6)

And so I think constant exposure, constantly taking

(18:16.6 - 18:19.0)

my son out on trips, he's been to

(18:19.0 - 18:21.2)

the zoo, he's been to Carnegie Hall.

(18:21.4 - 18:23.9)

I don't limit my child because of his disability.

(18:24.0 - 18:26.5)

It doesn't you know negate the fact that he still

(18:26.6 - 18:28.4)

needs to be exposed and he still needs

(18:28.5 - 18:29.8)

to be able to explore his world.

(18:29.9 - 18:32.9)

And I think that's why he's okay with traveling on

(18:32.9 - 18:35.3)

a plane ten plus hours like they have to on

(18:35.3 - 18:38.4)

a non stop flight to West Africa, because he's been

(18:38.5 - 18:41.9)

used to traveling, traveled ever since he was an infant.

(18:42.0 - 18:43.7)

You know He's used to being out and about.

(18:43.8 - 18:46.0)

So I'm grateful that I've taken that time

(18:46.1 - 18:48.3)

to you know expose him to the world around him.

(18:48.4 - 18:50.5)

So I would say that the one thing you

(18:50.5 - 18:52.9)

would need to do is like expose them to everything.

(18:53.0 - 18:55.7)

Don't limit them to everything. Right? Don't limit them.

(18:55.7 - 18:57.1)

And I know it's hard because you want to

(18:57.1 - 19:00.9)

protect your child from being ostracized by society.

(19:01.0 - 19:03.0)

At the same time, you

(19:03.0 - 19:04.6)

are your child's biggest advocate.

(19:04.7 - 19:07.0)

The greatest thing that you can do for your child

(19:07.2 - 19:09.8)

and for society as a whole is to take your

(19:09.9 - 19:13.4)

child outside, let them walk around, let them explore, let

(19:13.4 - 19:15.4)

the world see who your child is.

(19:15.5 - 19:18.4)

Because trust me, there are people that are ready to

(19:18.4 - 19:21.4)

love and support your child just as much as you

(19:21.4 - 19:23.6)

are and that want to see them succeed.

(19:23.7 - 19:27.1)

And that understand the importance of diversity

(19:27.2 - 19:29.6)

and the value that, that brings into

(19:29.6 - 19:33.2)

the community, the workplace, the school place. You know

(19:33.2 - 19:35.6)

Everyone has their contribution, their

(19:35.6 - 19:37.4)

unique contribution to society.

(19:37.5 - 19:38.8)

And we all need to be

(19:38.8 - 19:40.7)

respective and more inclusive of that.

(19:40.8 - 19:43.2)

No one should be treated differently just

(19:43.3 - 19:46.4)

because they're different than mainstream society.

(19:46.6 - 19:48.4)

We have to love more and there needs

(19:48.5 - 19:50.0)

to be more humanity in the world.

(19:50.1 - 19:51.6)

I definitely agree with that.

(19:51.6 - 19:53.2)

I definitely do agree with that.

(19:53.2 - 19:55.9)

You talk about you know being ostracized

(19:55.9 - 19:57.3)

by society a little bit.

(19:57.4 - 19:58.8)

Is that one of your fears?

(19:58.9 - 20:01.7)

That your son could be ostracized by society?

(20:01.8 - 20:04.2)

I believe so, and I think that it's going to bother

(20:04.2 - 20:07.8)

me more than it's going to bother him, because he is just... he's dancing

(20:07.9 - 20:09.5)

to the beat of his own drum right now.

(20:09.6 - 20:11.1)

And I love that about him.

(20:11.1 - 20:13.7)

He's unfazed by it, and I just pray

(20:13.7 - 20:16.4)

that he continues to be unfazed by it.

(20:16.4 - 20:19.0)

I think the older that we get, the more mature

(20:19.0 - 20:21.5)

that people get, or just the older in general, the

(20:21.6 - 20:26.8)

more we focus on you know being in, being seen, being valued.

(20:26.9 - 20:30.4)

And I'm grateful that I've instilled in my son so much

(20:30.5 - 20:32.9)

that he is loved and he can do whatever he wants

(20:33.0 - 20:37.1)

to do, that I really hope you know.. that I know that it's

(20:37.1 - 20:40.4)

deep down within him and within the spirit, and so I

(20:40.4 - 20:43.0)

know that he's going to be okay. Right.

(20:43.1 - 20:46.0)

But why are you still like afraid?

(20:46.2 - 20:48.8)

I think I'm worried because as a mother, as

(20:48.9 - 20:51.0)

a parent, you want to protect your kids from

(20:51.0 - 20:53.0)

the meanness and the cruelness of the world.

(20:53.1 - 20:55.4)

I feel like that's one of our duties as parents.

(20:55.4 - 20:57.2)

You never want to see your child going through

(20:57.2 - 21:00.2)

hardships just because somebody just wants to pick on

(21:00.2 - 21:03.2)

the fact that you don't "fit in."

(21:03.2 - 21:07.0)

So I think that that's where my sadness

(21:07.0 - 21:08.8)

comes in, because I don't ever want to

(21:08.8 - 21:11.1)

see him nor anybody else picked on.

(21:11.2 - 21:13.2)

I've been bullied, and you know that's a big thing

(21:13.2 - 21:15.7)

that's been happening in society, is that children

(21:15.8 - 21:18.0)

and even some adults have been being bullied

(21:18.0 - 21:21.8)

and the devastating consequences of that repeated abuse.

(21:21.9 - 21:23.3)

And I don't want to see that

(21:23.4 - 21:25.0)

happen to my son or anyone else.

(21:25.1 - 21:26.5)

So that's why I'm such a big

(21:26.6 - 21:29.0)

advocate on taking your child out.

(21:29.0 - 21:32.2)

And if someone has something negative to say, counteracting

(21:32.2 - 21:33.8)

it and throwing it back at that person.

(21:33.9 - 21:36.1)

Like, why do you feel the need to project

(21:36.1 - 21:39.4)

your insecurity on somebody who's different than you?

(21:39.5 - 21:40.1)

Right. Right

(21:40.3 - 21:43.5)

I think my mom was a little bit scared about that too.

(21:43.5 - 21:45.8)

And I can relate to that point because my

(21:45.9 - 21:47.9)

mom kind of raised me to be like, listen,

(21:48.0 - 21:50.5)

I see you as this, but outside the world

(21:50.5 - 21:52.9)

is going to judge you by your wheelchair.

(21:53.0 - 21:55.8)

So what I need you to do is always put your best

(21:55.9 - 21:59.1)

foot forward and show them that you're smart at all times.

(21:59.2 - 22:01.8)

Looking back on it, now that I'm older, she was

(22:01.9 - 22:04.2)

trying to instill that in me because she could have

(22:04.2 - 22:07.3)

been fearful herself that people are going to judge me

(22:07.4 - 22:10.2)

based on what I was sitting in and say, oh,

(22:10.2 - 22:12.2)

she can't do this, she can't do this.

(22:12.3 - 22:15.6)

So now we have to you know treat her differently.

(22:15.7 - 22:18.4)

So she was always like, you have to make sure

(22:18.6 - 22:21.3)

you show people at all times that you're intelligent.

(22:21.4 - 22:24.0)

So I can definitely relate to that.

(22:24.0 - 22:26.7)

And now I see now that I'm older and now

(22:26.7 - 22:30.6)

that I'm having these conversations with different people, that my

(22:30.6 - 22:33.1)

mom was sort of scared of the same things and

(22:33.2 - 22:35.3)

trying to prepare me for those things.

(22:35.4 - 22:37.9)

And it can be hard because when children are nonverbal

(22:38.0 - 22:41.4)

or not a lot, like not very verbal, it can

(22:41.4 - 22:43.8)

be scary when your child comes home and you're talking

(22:43.9 - 22:45.6)

to them and you just hear them say the word

(22:45.7 - 22:48.5)

stupid because you know, they've either heard somebody call them

(22:48.5 - 22:51.3)

stupid or say something like that, and I immediately come

(22:51.4 - 22:52.7)

back and say Abdul

(22:52.7 - 22:53.8)

We don't use that word.

(22:53.9 - 22:56.5)

Like, you are very intelligent, you're a

(22:56.5 - 22:58.8)

smart young man, you're intelligent, you can

(22:58.8 - 22:59.8)

do whatever you want to do.

(22:59.8 - 23:03.5)

I always counteract that because I never want outsider voices

(23:03.5 - 23:06.2)

to be bigger than his inner voice and what he's

(23:06.2 - 23:08.7)

been you know the values that have been instilled in him.

(23:08.8 - 23:11.4)

Aww I think you're going to make me cry for the first time

(23:11.4 - 23:15.8)

I'm gonna cry on this show. That is definitely it, right?

(23:15.9 - 23:18.4)

And I really want all parents

(23:18.4 - 23:19.8)

to take that away from it.

(23:19.9 - 23:22.2)

Even if you have a child that is ably

(23:22.2 - 23:25.6)

different treat them just like everyone else, oh, yeah, there's

(23:25.6 - 23:28.1)

no reason why you have to treat them differently.

(23:28.1 - 23:30.7)

(Cartoon Climbing Downstairs Sound Effect)

(23:30.7 - 23:33.2)

And I talked to my son exactly the way

(23:33.3 - 23:35.3)

that I'm talking on this podcast right now, the

(23:35.3 - 23:38.0)

way that I would talk to a normal adult. You know

(23:38.0 - 23:39.0)

When he was younger, I used

(23:39.1 - 23:42.3)

to, you know oh, hi, what's going on?

(23:42.4 - 23:45.0)

But now it's just I really talked to him like

(23:45.1 - 23:47.1)

a regular person, like, you know what I'm saying?

(23:47.1 - 23:47.8)

Regular person.

(23:47.8 - 23:49.5)

But I talked to him as if he doesn't have

(23:49.5 - 23:52.2)

a disability because I want him to be able to

(23:52.3 - 23:57.6)

interact appropriately, but also understand that like you are a person.

(23:57.6 - 23:59.6)

Like, I identify you, your body,

(23:59.6 - 24:02.0)

your spirit as something of value.

(24:02.1 - 24:04.4)

And I'm going to talk to you like somebody

(24:04.5 - 24:07.8)

of value and I want him to know, to

(24:07.9 - 24:11.1)

be able to communicate effectively with other people.

(24:11.2 - 24:13.4)

So I don't baby him when I

(24:13.4 - 24:15.7)

reprimand him for doing something wrong.

(24:15.9 - 24:17.8)

You know I do it in a loving way, but I do it

(24:17.8 - 24:20.2)

in a way that lets him know I'm disappointed in him.

(24:20.3 - 24:23.4)

And I'm disappointed that despite being taught to do

(24:23.4 - 24:26.0)

the right thing, he chose to do you know to either

(24:26.0 - 24:28.6)

not listen or to do the exact opposite.

(24:28.6 - 24:30.4)

And that there's always a consequence,

(24:30.4 - 24:31.6)

whether it's good or bad.

(24:31.8 - 24:35.1)

So I teach him that because I want him

(24:35.1 - 24:36.9)

to understand that I'm not always going to be

(24:36.9 - 24:38.4)

around and I need him to be able to

(24:38.5 - 24:41.9)

make wise decisions whether I'm around him or not.

(24:42.1 - 24:44.2)

So I also let him know I hold

(24:44.2 - 24:47.8)

him responsible because you know contrary to what people believe,

(24:47.9 - 24:50.7)

people with special needs actually are very intelligent,

(24:50.8 - 24:52.9)

whether they can communicate it or not.

(24:53.0 - 24:55.0)

And so you have to hold

(24:55.1 - 24:57.0)

everybody accountable for their actions.

(24:57.0 - 24:59.3)

And so that's what I'm trying to instill in

(24:59.3 - 25:01.3)

him now, just to be accountable for your actions.

(25:01.4 - 25:04.4)

If you don't listen and something happens that

(25:04.4 - 25:06.2)

you don't want to happen, it's because you

(25:06.2 - 25:08.6)

didn't listen and there was a negative consequence.

(25:08.7 - 25:11.0)

But I know that he knows that it's correction and

(25:11.0 - 25:13.3)

love because he always comes back and he wants to

(25:13.3 - 25:15.2)

hug me, he wants to love on me.

(25:15.2 - 25:19.3)

So he understands that, yes, you know I had an accident, I made

(25:19.3 - 25:22.0)

a boo boo, I did something I wasn't supposed to do.

(25:22.2 - 25:24.1)

But he knows that he's loved and

(25:24.1 - 25:26.0)

supported by me and my husband. Yeah.

(25:26.0 - 25:28.5)

And as the person who is ably different, I

(25:28.6 - 25:31.2)

can tell you, you are doing the right thing because

(25:31.3 - 25:33.3)

we just want to be seen as people.

(25:33.4 - 25:35.3)

We don't wanna be treated differently.

(25:35.4 - 25:37.8)

We want to be seen just like everyone else.

(25:37.9 - 25:40.3)

We do everything that everyone else does,

(25:40.4 - 25:42.2)

we just happen to do it differently.

(25:42.3 - 25:45.1)

So I will say as a parent, you are doing

(25:45.2 - 25:47.7)

the best, you are rocking it, you are killing it.

(25:47.8 - 25:49.3)

So you are doing a good job

(25:49.3 - 25:51.4)

and please, please keep it up.

(25:51.5 - 26:13.6)

(Cheering Sound Effect)

(26:13.7 - 26:51.2)

(Instrumental Music)

(26:51.2 - 26:54.8)

What is one of your fondest memories of hanging

(26:54.8 - 26:57.5)

with your son or just family time in general?

(26:57.5 - 26:59.7)

I can't think of any right now.

(26:59.7 - 27:00.9)

Any isolated incidents?

(27:00.9 - 27:02.1)

You put me on the spot. (Latavia chuckles)

(27:02.1 - 27:05.2)

(Story time sound effect)

(27:05.2 - 27:08.2)

I just remember being on I want to say we were with

(27:08.2 - 27:10.7)

my best friend who is like a sister to me, she is

(27:10.7 - 27:14.2)

a sister to me and we were riding in the car and

(27:14.3 - 27:17.9)

he just kept saying thank you, like thank you.

(27:17.9 - 27:19.9)

I thank you, I thank you

(27:19.9 - 27:25.7)

And it meant so much because, you know, your child knows how

(27:25.7 - 27:29.3)

much you love them to be able to say thank you.

(27:29.4 - 27:32.9)

And my son doesn't talk as much, he talks a

(27:32.9 - 27:35.5)

lot more than he used to, but just the acknowledgement.

(27:35.6 - 27:38.0)

And every so often he'll do that, we'll be

(27:38.0 - 27:40.9)

sitting somewhere and we could be doing nothing and

(27:40.9 - 27:43.7)

he would just start saying, thank you, Mommy.

(27:43.8 - 27:48.1)

I thank you, I thank you, thank you and I say, you're welcome, Abduly

(27:48.1 - 27:50.7)

Like, you're so welcome. You're welcome.

(27:50.8 - 27:52.9)

And I let him know you are welcome.

(27:53.0 - 27:55.4)

But you are so deserving of that.

(27:55.5 - 27:59.4)

Our children are deserving of all the love and all

(27:59.4 - 28:03.0)

the opportunities that this life and this world has to

(28:03.1 - 28:05.7)

give us and we just have to nurture them into

(28:05.8 - 28:08.0)

knowing that they are deserving of that.

(28:08.1 - 28:10.9)

There is nothing that they can't do if

(28:10.9 - 28:12.4)

they don't put their mind to it with

(28:12.4 - 28:16.3)

the right support systems and tools and resources.

(28:16.4 - 28:20.2)

So continue to invest in our children, continue to

(28:20.2 - 28:23.3)

invest in your child, continue to invest in yourself.

(28:23.5 - 28:25.6)

Because as much as you invest in them, you have

(28:25.6 - 28:28.2)

to remember self care and that you can't pour from

(28:28.2 - 28:30.2)

an empty vessel if that means you need to take

(28:30.2 - 28:33.0)

a walk, you need to journal, you need to vlog,

(28:33.1 - 28:35.3)

you need to talk to somebody. You know

(28:35.3 - 28:36.8)

Mental health is so important.

(28:36.9 - 28:39.0)

It can be exhausting trying to

(28:39.0 - 28:40.2)

take in so much information.

(28:40.3 - 28:42.6)

As a special needs parent, if you need to

(28:42.6 - 28:45.4)

talk to a psychiatrist or a therapist, there is

(28:45.4 - 28:47.6)

nothing wrong with you other than you needing to

(28:47.6 - 28:50.5)

release and you cannot pour from an empty cup.

(28:50.6 - 28:53.3)

So take the time for you do a crossword,

(28:53.4 - 28:56.0)

take a bubble bath, you know let yourself sit in the

(28:56.0 - 28:59.2)

room and uninterrupted for an hour or 2 hours.

(28:59.3 - 29:03.2)

Go for a spa treatment, a massage, you know all these things.

(29:03.3 - 29:05.6)

Maybe have some downtime where you're doing a family

(29:05.7 - 29:09.0)

night and everybody's just relaxing on the couch.

(29:09.4 - 29:13.0)

But give yourself grace too, because it's not an easy journey,

(29:13.1 - 29:15.4)

but you're just as worth it as your child is.

(29:15.5 - 29:17.5)

So take the time to pour into yourself,

(29:17.6 - 29:20.5)

because our children are watching what we do

(29:20.5 - 29:22.2)

too, as well as what we say.

(29:22.3 - 29:25.1)

So understand that when you're not practicing self

(29:25.2 - 29:27.6)

care, you're giving them the example that they

(29:27.8 - 29:32.1)

should be running, running, running, running, running, running and not taking the

(29:32.1 - 29:33.3)

time to just be still.

(29:33.4 - 29:35.3)

So my son, he takes the time to

(29:35.3 - 29:37.5)

be still because he sees me be still.

(29:37.5 - 29:40.8)

(Cartoon Trill Sound Effect)

(29:40.8 - 29:43.3)

So you spoke about pouring into

(29:43.3 - 29:45.2)

yourself, going off of that.

(29:45.3 - 29:48.0)

What are some of your future endeavors

(29:48.1 - 29:51.1)

that you want to do for you? For me? Let's see.

(29:51.1 - 29:52.3)

So I want to travel more.

(29:52.3 - 29:54.5)

I haven't been able to I'm in grad school right now, so

(29:54.6 - 29:56.8)

I haven't been able to travel as much as I want to.

(29:56.9 - 29:58.6)

To be able to travel with my family

(29:58.7 - 30:00.9)

more, like together as a unit and not

(30:01.0 - 30:02.9)

separately, just because of school and work.

(30:03.0 - 30:04.3)

That's one of my goals.

(30:04.4 - 30:07.1)

I also started an LLC a couple of years ago.

(30:07.2 - 30:09.2)

I'm an essential healthcare worker, so I haven't

(30:09.2 - 30:11.4)

been able to focus on my business as

(30:11.5 - 30:14.1)

much because I've been working the entire pandemic.

(30:14.2 - 30:15.2)

And you know here in New York, it

(30:15.2 - 30:18.1)

got very, very overwhelming, very, very quickly.

(30:18.2 - 30:20.4)

And so I haven't been able to focus on my business.

(30:20.5 - 30:21.9)

So I would like to be able to focus on

(30:21.9 - 30:25.5)

my business and possibly go and get my terminal degree.

(30:25.6 - 30:26.1)

We will see.

(30:26.1 - 30:31.4)

I'm not sure yet, but in the works, in the works oooo that sounds awesome.

(30:31.5 - 30:33.2)

So what is your business?

(30:33.3 - 30:36.0)

You talked about it, so let us know.

(30:36.0 - 30:39.3)

So my business is going to be a catering business.

(30:39.3 - 30:44.1)

It is a catering business, I should say. Its called A Touch of Lily LLC

(30:44.2 - 30:46.0)

And I named it after my grandmother.

(30:46.1 - 30:48.1)

I'm from the south, and so cooking

(30:48.2 - 30:50.6)

and baking are very important to me.

(30:50.7 - 30:52.6)

My mom was a baker for most of my

(30:52.7 - 30:56.0)

childhood, and my grandma was an amazing cook.

(30:56.1 - 31:00.2)

And so I just wanted to incorporate the love of people,

(31:00.2 - 31:02.9)

the love of cooking and baking that they both had.

(31:03.0 - 31:04.2)

And my mom is still alive.

(31:04.3 - 31:06.1)

Unfortunately, my grandmother is not.

(31:06.1 - 31:08.2)

So I just wanted to continue her legacy

(31:08.3 - 31:11.4)

through my love of cooking and sharing community

(31:11.5 - 31:14.1)

and communal dining and building stronger relationships in

(31:14.1 - 31:16.6)

our community because we really are better together.

(31:16.7 - 31:18.5)

And so that is what I hope to

(31:18.5 - 31:21.9)

do with my company, but also help to

(31:21.9 - 31:26.2)

fund nonprofits and other community service organizations.

(31:26.4 - 31:28.0)

That is awesome.

(31:28.1 - 31:30.3)

So I'm going to be coming to get some food soon Sounds good

(31:30.4 - 31:31.6)

I know it's gonna come off

(31:31.7 - 31:33.8)

the ground, so I'm coming to get some food.

(31:34.0 - 31:35.0)

I know you're going to maybe

(31:35.1 - 31:37.6)

cook some soul food or something. Yes

(31:37.6 - 31:39.9)

Yes That is right up my alley.

(31:39.9 - 31:42.8)

So I'm coming to get some, be prepared.

(31:42.8 - 32:22.6)

(Instrumental Music)

(32:22.6 - 32:23.2)

Okay

(32:23.4 - 32:27.3)

So I like to end with a quote of the episode.

(32:27.4 - 32:29.9)

So what is one of your favorite quotes?

(32:29.9 - 32:31.9)

Or what is, like, one thing you want

(32:31.9 - 32:34.1)

people to take away from this episode?

(32:34.2 - 32:36.7)

What is one thing you want to dispel about

(32:36.7 - 32:39.8)

people who are ably to different? Any misconceptions?

(32:40.0 - 32:40.7)

Let us know.

(32:40.7 - 32:43.1)

That's a loaded question. (Ms. Shontay & Latavia Laughing) Its okay

(32:43.1 - 32:45.9)

So one of the biggest quotes that's kind of

(32:45.9 - 32:48.8)

served as my mantra is, it's an African proverb,

(32:48.8 - 32:51.1)

and it says, I am because we are, and

(32:51.2 - 32:53.2)

because we are, therefore I am complete.

(32:53.3 - 32:55.8)

And it's understanding that we are all

(32:55.8 - 32:58.5)

interconnected, that we all need each other.

(32:58.6 - 33:01.7)

If you're drinking coffee, it's because a Colombian farmer

(33:01.8 - 33:05.5)

or a farmer sowed the seed, nurtured that seed,

(33:05.6 - 33:09.3)

grew that seed, harvested that seed with other people.

(33:09.4 - 33:10.8)

It was shipped by people.

(33:10.9 - 33:12.0)

It came to you.

(33:12.1 - 33:14.6)

Whoever made your coffee maker, made the coffee maker.

(33:14.7 - 33:17.4)

You know, we're alive and we're thriving today

(33:17.4 - 33:19.7)

because of the efforts of somebody else.

(33:19.8 - 33:22.3)

So we are all interconnected in life,

(33:22.4 - 33:24.4)

and we all need to realize that.

(33:24.6 - 33:26.6)

And again, if you see somebody that's different

(33:26.7 - 33:28.5)

than you, see what you can do to

(33:28.5 - 33:30.7)

put a smile on their face, say hello.

(33:30.8 - 33:32.8)

Sometimes it's the simple gestures that we

(33:32.8 - 33:34.3)

do that make the biggest difference.

(33:34.4 - 33:36.8)

And if you see somebody being ostracized, take

(33:36.8 - 33:38.8)

the opportunity to either remove them from the

(33:38.8 - 33:41.4)

situation, from that person, or to ask the

(33:41.4 - 33:44.0)

aggressor why they're even feeling the need to

(33:44.0 - 33:46.9)

single somebody out based on their differences.

(33:46.9 - 33:49.4)

But know that you can be one of the

(33:49.4 - 33:52.9)

biggest contributors to saving somebody's life and making somebody

(33:53.0 - 33:55.2)

feel as a valued member of community.

(33:55.4 - 33:57.8)

So you know, your actions do matter.

(33:57.9 - 33:59.3)

Your inactions do matter.

(33:59.3 - 34:01.4)

So make sure to make your actions count.

(34:01.5 - 34:05.8)

That is very insightful, and I think sometimes we do

(34:05.8 - 34:08.0)

lose sight of that, that we have to stand on

(34:08.1 - 34:10.2)

other people's shoulders to get where we are right.

(34:10.2 - 34:12.1)

We all need each other at some point.

(34:12.2 - 34:13.9)

We all need somebody's support.

(34:14.0 - 34:16.7)

So I think thats, that is really what's missing

(34:16.7 - 34:19.3)

in today's world, that we rely on each

(34:19.4 - 34:21.3)

other to get where we need to go.

(34:21.3 - 34:22.7)

It's not just us alone.

(34:22.7 - 34:25.0)

And I think we have gotten into this mode

(34:25.0 - 34:27.9)

in society where survival of the fittest, which is

(34:27.9 - 34:30.8)

horrible, and we need to bring back more love,

(34:30.9 - 34:33.8)

more care, more compassion for each other, and just

(34:33.8 - 34:35.4)

start spreading that in the world.

(34:35.4 - 34:38.3)

And I hope this episode does that for you guys.

(34:38.4 - 34:42.0)

(Delayed Beat Sound Effect)

(34:42.0 - 34:45.3)

So that is all we have for you today, folks.

(34:45.4 - 34:46.2)

Thank you, Ms.

(34:46.2 - 34:47.8)

Shontae, for coming on.

(34:47.9 - 34:49.0)

You are awesome.

(34:49.2 - 34:51.0)

Give yourself a round of applause.

(34:51.1 - 34:52.8)

Give her round of applause, guys.

(34:52.9 - 34:54.1)

she was the best.

(34:54.2 - 35:08.2)

(Cheering Sound Effect)

(35:08.2 - 35:10.0)

You guys are the best.

(35:10.1 - 35:13.1)

Thank you for sharing, liking, and subscribing.

(35:13.2 - 35:16.6)

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(35:16.7 - 35:20.7)

You hit that plus button in the top left hand corner.

(35:20.7 - 35:23.1)

And if you would like to donate to Queens On

(35:23.1 - 35:26.1)

A Roll Podcast, you just have to create a patreon

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(35:28.4 - 35:31.7)

I have four up there, guys, and I

(35:31.7 - 35:35.0)

promise I will have great, great content for you.

(35:35.1 - 35:38.0)

So thank you for your continued support.

(35:38.2 - 35:39.5)

I love you guys.

(35:39.7 - 35:41.5)

And if you have any questions for

(35:41.5 - 35:43.2)

me or any of my guests, you

(35:43.2 - 35:47.3)

can submit them to Queensonaroll.podcast@gmail.com.

(35:47.4 - 35:47.8)

Again.

(35:47.9 - 35:51.4)

That is queensonaroll.podcast@gmailcom.

(35:51.5 - 35:54.6)

And we are rolling out. Bye, guys. Bye.

(35:54.7 - 35:55.4)

See you next week!

(35:55.4 - 36:47.4)

(Instrumental Music)

(36:47.4 - 36:53.1)

PLEASE go follow our insta @queensonaroll.podcast & FB Queens On A Roll & submit those questions to queensonaroll.podcast@gmail.com